ISSN - 0973-0958

Pediatric Oncall Journal View Article

Covid19 Pandemic: Impact on Quality of Life of Children with Cerebral Palsy. A Brief Report of Parental Experiences, Challenges & Suggestions
Nusrat Inamdar, Anupama Mauskar, Minal Wade, Govind Choudhary.
Pediatric Department, HBTMC & Dr R N Cooper Municipal General Hospital, Mumbai, India.
Abstract
The Covid 19 Pandemic has affected lives of people across the globe. Controlling measures like lockdown, social distancing, schools closure, Parent’s working pattern,loss of job and conversion of majority of government hospitals to Covid-19 care facility with limited or no provision of non-emergency & routine medical care has affected the health and health care seeking behaviour of the general population.
The children with different Cerebral Palsy are dependant to a varied extent on the care taker for home care, accessing health care facilities and community intervention services as per their disability severity. Thus, above changes have made them more vulnerable for the untoward consequences on physical and mental health.1,2
This case series describes experiences of parents (of children with Cerebral Palsy) during COVID-19 Pandemic and challenges they faced while taking care of their child.
Why this article important?
Health Professionals need to design more accessible, productive and family directed care even during Pandemic situations like Covid-19 in future, for families having children with special needs for better outcome. Our study has many learning points, few important ones are as follows: 1. Active participation of the mother in the rehabilitation of a child with CP can ensure the therapy even during lockdown and other natural calamity. 2. Indoor physical activities/ games and unstructured play, has a vital role in child’s motor and cognitive development and should be encouraged. 3. Health Professionals need to design more accessible, productive and family directed care even during Pandemic situation like Covid-19 in future.
Summary of article
The Covid 19 Pandemic and controlling measures like lockdown, social distancing, schools closure, Parent’s working pattern,loss of job and conversion of majority of governmental hospitals to Covid-19 care facility had affected the health and health care seeking behaviour of the general population. The children with Cerebral Palsy are dependant to a varied extent on the care taker as per their disability severity. This case series describes experiences and challenges of parents of children with Cerebral Palsy during COVID-19 Pandemic.We intend to publish our work in your esteemed journal as a Case Series. This study will help in improving quality of care provided to patients and families having child with special need.

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